FRIDAY---JANUARY 30, 2009
Dad was still in the CCU. He was sick of being sick and weak. He said "I'm gonna die". He also said to just throw him in the old folks home to die. He was losing hope and not seeing any improvements at all. He needed total care and could barely even talk. My mom and kids and I stayed most of the 11 hours we were away from home with my dad. We left the hospital for a while to go do some stuff. My brothers Kelly and Robin got there to visit with and help take care of dad.
After we got back to the hospital dad got moved out of the CCU and into the normal part of the hospital. He was lucky and got a room with only 1 bed and his own bathroom. That seemed to perk him up and helped him regain enough strength to walk a few steps from the chair to his bed. We all talked to him about our hopes of him coming home soon and how we would take care of him and so on. He started getting a bit more hope then.
SATURDAY---JANUARY 31,2009
Dad suddenly got discharged back to the nursing home to his over crowded room. Depression and despair once again.
The 1st thing dad said to me when I got to the nursing home was " I wanna go home". He said it while looking me in the eyes as if pleading. It was heart breaking.
We had told him that in order for him to come home he needed to regain enough strength to at least be able to stand himself up from a sitting position because my mom is not strong enough to lift him out of his bed and into the wheelchair.
Back to the nursing home meant despair for him.
SUNDAY---FEB 1, 2009
He looked bad. Seemed so bad. So weak. He was kind of despondent. Just blah.
MONDAY---Feb 2, 2009
More despair, slept a lot. As the day went on he got some better tho which is normal for him since he is a night owl. Refused rehab.
TUESDAY---FEB 3, 2009 and WEDNESDAY---FEB 4, 2009
Goody days! He was able to talk better, walk some, do rehab, eat better, sit up to watch TV and enjoy visits. His roommate went home on Wed which made the room less crowded. His roommate was a real nice man but being crammed into 1 room with 2 beds, 2 wheelchairs, 2 walkers, 1 potty chair, 1 chair, 1 O2 tank, 2 TV's each on a stand, 2 bed side tables, 2 dressers is VERY crowded and unsettling. So to get some space and privacy back was nice for both dad and us.
THURSDAY---FEB 5,2009
Bad day.He was back to being weak, sleeping a lot and unable to do anything as if he was on his death bed again. We were told that this is the nature of Parkinson's in its advanced stages. Good and bad days. The bad days are so hard because he requires total and complete care and that is not always easy because he is a tall, big built man.
Some of his siblings and nieces came to visit that day.
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